It is with a heavy heart that I write to my sisters who share this unpredictable, auto-immune deficiency disease. My empathy overflows when I see vital, mostly young, women who are just being diagnosed, but are hopefully learning how to care for themselves, when even doctors may be challenged how to fight this indefinable illness. Know your own body … what works for you … what triggers the pain, fatigue, and anxiety that comes with this insidious wolf (root word, Lupus, means “wolf” in French) that dwells inside us, eating away our hopes, dreams, and futures … literally.
I recently had a drug side-effect from a new-to-me medication, which hospitalized me for almost a week. I advocate for the cure, support, and especially understanding from others who may not be able to “see” the wolf lying in wait to take away our spirit, self-esteem, and essence from our loved ones.